Saturday, May 22, 2021

Prader-Willi Syndrome Awareness Month 2021

Prader-Willi Syndrome Awareness Month

Creativity has got to start with humanity and when you're a human being, you feel, you suffer. You're gay, you're sick, you're nervous or whatever.

Marilyn Monroe

Like many syndromes and disorders, they’re hard to prevent, difficult to diagnose at an early age, and generally have no cure. Prader-Willi Syndrome is one of those disorders. Because it can happen in any family, it affects about one in 12,000 to 15,000 people each year in the United States alone. Prader-Willi Syndrome Awareness Month is a holiday dedicated to informing people about this condition to help families out there in need of answers.

History of Prader-Willi Syndrome Awareness Month

Prader Willi Syndrome was discovered and first diagnosed in 1956 by Swiss doctors Andrea Prader, Alexis Labhart, and Heinrich Willi. After they observed nine children with common characteristics, such as small hands and feet, weak muscles from birth, intellectual disabilities, on-set childhood obesity, and constant hunger, they were able to determine that thee symptoms were caused by a disorder that wasn’t named yet. Today, doctors can determine this syndrome through genetic testing, as they have now found that this syndrome is caused by an abnormality of chromosome 15, which results in the dysfunction of the hypothalamus, or the part of the brain that controls functions such as hunger, emotions, fertility, and body temperature.

Prader-Willi is part of a spectrum, similar to Autism and ADHD, which means infants and children could have a varying degree of symptoms and be misdiagnosed as a result. As more research became relevant, the holiday itself began to form. In 2009, representatives Ed Royce and Jane Harman introduced the holiday to the House of Representatives in the United States. From there, it passed as an official month-long holiday to be observed. Organizations such as the Foundation for Prader-Willi research and the Prader Willi Syndrome Association now sponsor the holiday as one of their main events for fundraisers and contests, where the money collected will go towards research to help families manage and treat the disorder.

How to celebrate Prader-Willi Syndrome Awareness Month

If you feel strongly about this cause, one of the best places to go for resources and information is to visit websites for organizations such as the Prader Willi Syndrome Association or the Foundation for Prader-Willi research and donate money towards their cause. Share this holiday on social media using the hashtag #praderwillisyndromeawarenessmonth and help inform people about what this syndrome is, how common is it, and how other people can help raise awareness.

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Celebration Lupus Awareness Month May 2021

Lupus Awareness Month

Lupus may sound like an exotic, rare disease, but it’s not one to be overlooked. Like many other life-threatening autoimmune diseases, it is important to know the early warning signs of Lupus so that any sufferers may begin battling it early on, even though it’s a very tough disease to identify. 

Lupus Awareness Month is observed in May and aims to increase understanding amongst the general public – not just medical professionals – of what this disease can do and why it’s so key to know the facts.

The history of Lupus Awareness Month

Lupus is an incurable disease, but there do exist treatments which can make living with it more manageable and improve the prognosis of the patient significantly. It cannot be transmitted from person to person, but it does seem to appear more frequently in people who have a history of it in their families.

Lupus is a tricky disease to catch because it is often mistaken for other afflictions, which means it can go undetected for years without even the person affected knowing. Amongst other symptoms, sufferers may exhibit a fever, tiredness, an increase in mouth ulcers and may even develop arthritis.

A common symptom of a lupus sufferer can often be seen on the skin of the face; a bright red rash which runs from the bridge of the nose, under the eyes and across the cheeks. Because of its this, this is often known as the ‘butterfly rash’. This butterfly rash is one of the most commonly associated symptoms of the disease – in fact, it is likely to be where it got its name from, with a part of its scientific name lupus erythematosus – ‘erythroid’ being derived from the ancient Greek word for ‘red’.

Lupus can be diagnosed by use of various types of blood testing. However, the Lupus Foundation of America estimates that a massive 5 million people across the world are living with lupus, and a large number of these people don’t even know it.

How to Observe Lupus Awareness Month

Education and research are essential if we are ever to find a cure for lupus – and this month, perhaps you can help out. Help to spread awareness about the disease by starting conversations on social media, or run some fund raising events for lupus research charities. Lupus is a mysterious and damaging disease, and until a cure can be found, do your bit in May by observing Lupus Awareness Month.

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Tuesday, May 11, 2021

Celebration Get Caught Reading Month May 2021

Get Caught Reading Month

We know how it is, there’s something special about getting lost in a book, but everyone around you intimates that you’re secluding yourself, or that you’re a bookish nerd. But how could you not want to lose yourself in another world, to go on great adventures and think deep thoughts with the greatest storytellers and thinkers of the ages. Hide your obsession no more! Get Caught Reading Month is your chance to come out of your bookish nook, and get caught reading!

History of Get Caught Reading Month

History has provided us with writers of every type, and books ranging from simple poetry to philosophy and complex scientific concepts. With so much exciting content in the world to read, it’s amazing there aren’t more people getting caught reading every day. In 1999 it was decided that there needed to be a celebration of reading and the authors that produce the works we love to lose ourselves in. So it was that the Association of American Publishers, the AAP, supported www.getcaughtreading.com in dedicating an entire month to being caught with your nose in a book.

Even more exciting, there are lots of celebrities and organizations that have joined in the cause! Mary-Louise Parker from the Big Bang Theory made a point of getting caught reading, and the Jim Hensen Company has used its puppets to encourage children and adults everywhere to read! Get Caught Reading Month is an important celebration for people everywhere!

Reading has helped to expand the minds of people everywhere sharing morals and spirituality, and even teaching people new skills and how to survive in situations they might not otherwise. Not to mention the ever growing library of fantasy worlds and stories to fuel our own personal mythologies and cultures. Without books, where would fandoms be?

How to celebrate Get Caught Reading Month

Well, it’s quite simple actually. You just need to dig your nose into a book and forget about the concerns of other peoples’ opinions. Take out your favorite book and read on your lunch break, take some time to read while you’re enjoying a quiet pre-work breakfast, and keep that book by your side on the bus. Who knows, you may run into other enthusiastic readers who share your passion, love your favorite authors, or may even direct you to new authors that you may love! Get Caught Reading Month is a great chance to meet other bibliophiles, so go out there and Get Caught Reading!

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